We’re ten weeks old!

image

Ella, day 70 in NICU

image

Raegan, day 70 in NICU

So hard to believe that the girls are closing in on three months. Even harder to believe is that our due date is Thursday, but there is still no end in sight for having our girls home.

Raegan has had quite the week, busy with bottles, tummy time, and new fun adventures like a mobile to watch and sitting in a carseat for the first time!

image

Raegan tries the carseat for the first time. NICU day 70

Ella is doing well, too, just a bit behind her sister. Raegan took all her feeds except one yesterday by bottle, which is a big step towards coming home. If she can continue to do that, her feeding tube will come out permanently. Ella gets better with bottles every day, but doesn’t always finish them. She is no longer spelling though, and is having more wakeful periods.

image

Ella, NICU day 68

Ella is just shy of 7 pounds and Raegan is 6 pounds, 8 ounces so both have passed their minimum weights to go home. They also need to have their feeding tubes out, be bottling at every feed and gaining weight, be off their monitors, and pass carseat tests before they can go home.

After weeks of hearing they could go home early, now I know it will be longer. They have said Raegan could even go home weeks before Ella. The idea that Raegan would be home but Ella would still be here is heartbreaking to say the least.

image

Raegan enjoys her mobile, day 69

Last night, I received a letter from Easter Seals asking for money. In it, they described a girl who, at birth, had had a brain injury which the ultrasounds showed the damage could cause cerebral palsy. The similarities between her and Ella made my blood boil. Enraged, I tore up the letter and told Jas it felt like a cruel joke. I’ve never received anything from them before, and it felt like a slap in the face. Obviously, I am in the anger stage and do not begrudge Easter Seals. We may, in fact, need them in the future. Still, even the simplest activities like opening the mail no longer feel safe.

image

Ella and Raegan celebrating St Paddy's, day 69

Advertisements

3 thoughts on “We’re ten weeks old!

  1. Hello, I’m a preemie mama as well. I wanted to say hello and share that I almost chucked my computer across my office when I received an email from March of Dimes/March for Babies. At that point (five years ago) my girls had just came home from a 12 week stint in the NICU, how dare they email me a picture that looked like what I had just experienced in the flesh. I’m going to follow along and cheer for your girls as so many cheered for mine. Blessings for bottle feeds, no A’s and B’s and passing carseat tests. – Hillary

  2. Great update! I’m Heather and I wanted to know if you would be willing to answer a question about your blog! If you could email me at Lifesabanquet1(at)gmail(dot)com that would be great!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s