The day that could have been

March 20th, the first day of spring, and the girls’ due date four years ago. I often reflect on this day as it gets closer. The day doesn’t cut as deep as it once did, especially the first two years; when they were still in the NICU and their due date came and went and […]

This little light of mine

In all the craziness of this time of year; the wrap up at work, present buying, birthday and Christmas celebrations, wrapping, wrapping, and more wrapping it is easy to get swept up into the madness of the holidays. Every night has been filled with either baking goodies to give out or wrapping presents, after spending […]

Once a preemie, always a preemie?

Today is World Prematurity Day, our third since the girls were born ten weeks too soon. I’ve been reflecting a lot on prematurity and its place in our story. I recently spoke on a Parent Panel to share our stories of prematurity and journeys home from the NICU. I caught the tail-end of a former […]

Give me a second while I readjust my crown

I’ve written a lot about trauma, especially the trauma that accompanies a premature birth. I think a lot of the post secondary trauma I’ve experienced in the girls’ lifetime is related to their birth; more so than the NICU stay. Maybe it was the suddenness of the delivery versus the time I had to adjust […]

Adventures in Cerebral Palsy

I’ve written a lot about letting go of some parenting dreams and expectations when you’re parenting a child with special needs or different abilities. The milestones shift. The path diverts. It really is like heading off on an adventure through the fog; sometimes, the fog engulfs you, stings you, leaves you battered, and other times, […]

On top of the hill 

Last week, I ran 5K in preparation for my upcoming 10K in support of the Women and Babies Program at the hospital the girls were born in. Admittedly, I was kinda slow and heading up a hill in the cemetery down the street from me. Breathless, I arrived at the top of the hill. Slowing […]

Thanks for the reminder, asshole.

Here’s the thing about strollers; they can hide a lot of truths, especially if you had no idea that a child had a special need or different ability just by looking at them. Of course, we live in a society where a lot of assumptions are made based on how a person looks. Recently, the […]

Home is where the heart is

Three years ago today, something wonderful happened. Two healthy newborns came home for the first time. Of course, technically they were already 80 days old and had fought battles most children never have to, but home they went to meet their big brother and furball sister, to sleep in a room decorated with stars and […]

13,000 steps for 80 days

I ran my first ever 5K in September, raising money for Sick Kids Hospital here in Toronto, where all of my kids have found themselves at one time, but where Ella in particular has spent many, many hours. I was proud of myself for finishing and for helping out a hospital that has not only […]

All of those memories 

I love Facebook memories for popping up pictures of my babies when they were in fact, babies, and not giants with wild hair and sassy attitudes. But, the last couple of weeks has featured my posts from three years ago-when I was admitted to HRO and living in the hospital to monitor the girls. (Coincidentally, […]