New year, old me 

I’ve never been one for resolutions, or even New Year’s, really. But, I do believe in goals and as 2016 started to come to a close, I began to reflect a lot on the year, and myself. As I thought back on the year, I realized that it felt as though a dark cloud was […]

All of those memories 

I love Facebook memories for popping up pictures of my babies when they were in fact, babies, and not giants with wild hair and sassy attitudes. But, the last couple of weeks has featured my posts from three years ago-when I was admitted to HRO and living in the hospital to monitor the girls. (Coincidentally, […]

The special needs elite?

This weekend we went to get our Santa picture done as a family and I made sure that we were there before his arrival to avoid massive lines and irritated children.  After waiting for some time, Santa’s elf approached us, and I assumed was going to welcome us as we were next in line, Ella […]

No, you staring at us is definitely super helpful 

I would be naïve to think that people don’t notice differences; whether it be that it’s just the four of us all the time or the AFOs Ella wears, but I suppose that I assumed that we were much more further along as humans. Really, at first glance, I’m just an average mum pushing a […]

Don’t ask me to predict the future 

It’s hard to believe that just three years ago, I was pregnant with the girls, just trying to get them to be born, not much thinking beyond that. I assumed if they could just be born, just make it that far, that all would be right in the world, and I’d have two adorable, chubby […]

To preschool and beyond 

I had a really difficult decision to make in the spring-to keep the girls together for preschool or to separate them and place Ella in a reverse-inclusion school for kids with different abilities, or special needs. Ultimately, I decided what was best for Ella was to place her in the specialized program, even though it […]

Yes, I am staring at your child

The other day, I saw a girl out walking with her parents. Doesn’t really seem like anything out of the ordinary, and yet it was extraordinary. This little girl, probably about eight years old, was walking holding onto her mum’s hands, who was hunched over behind her, and rocking some lovely AFOs. Most people might […]

I want to walk

   Navigating life as a special need parent can be simultaneously exhausting and overwhelming. Even just realizing how inaccessible the city is can feel downright depressing as you start to think about how much it will effect your kid as they start to grow up. We definitely take our triumphs wherever we can; Ella started […]

Happy neonatal nurses day!

It seems like every day is national day of something or other, and usually I don’t even notice, but today is extra special; Neonatal Nurses Day. And let me ask you,  have you hugged a NICU nurse today? If you ever get the chance, you should.  These people, these wonderfully strong and bright people, see […]

Seriously, why are we still using the R word?

Years ago, when I was working in Chicago, the term mentally retarded was still used to diagnose our students – sure, it was shortened to MR, but it was still there, hanging over everyone like a controversial cloud. I hated it, and still do. It’s not a diagnosis, it’s a social stigma. Now, people say […]