Once a preemie, always a preemie?

Today is World Prematurity Day, our third since the girls were born ten weeks too soon. I’ve been reflecting a lot on prematurity and its place in our story. I recently spoke on a Parent Panel to share our stories of prematurity and journeys home from the NICU. I caught the tail-end of a former […]

Give me a second while I readjust my crown

I’ve written a lot about trauma, especially the trauma that accompanies a premature birth. I think a lot of the post secondary trauma I’ve experienced in the girls’ lifetime is related to their birth; more so than the NICU stay. Maybe it was the suddenness of the delivery versus the time I had to adjust […]

In celebration of nurses

There was a time I never really gave nurses much thought. Not that I didn’t care, just that I kind of took them for granted, that when you got sick, nurses would just be there, much like you take oxygen for granted. But when my girls were born just over ten weeks early, I spent […]

Happy neonatal nurses day!

It seems like every day is national day of something or other, and usually I don’t even notice, but today is extra special; Neonatal Nurses Day. And let me ask you,  have you hugged a NICU nurse today? If you ever get the chance, you should.  These people, these wonderfully strong and bright people, see […]

Thank you for our year home

Saturday,  March 28th we celebrated the girls’ one year home with a pink and gold filled party attended by friends and family. Then, yesterday, we celebrated the staff at the hospital who made it possible for our girls to come home. Before the girls were even born there were people who took care of them, […]

80 Days, Part Two

Today officially marks the girls’ 160th day of life, and after spending 80 days in the NICU, the girls have been home 80 days. For every day that a nurse took care of our girls, I have taken care of them. For every surgery, blood transfusion,  and head ultrasound that Ella received, my girls have […]

How do you say thank you?

I can’t imagine that upon seeing the two lines – pregnant!- anyone is hoping for a high risk pregnancy. The excitement and nervousness quickly turns to anxiety, fear, and the unknown. When we found out we were pregnant again, we never imagined the journey we were about to take. Dr. Hui discovered the twins, and […]