Once a preemie, always a preemie?

Today is World Prematurity Day, our third since the girls were born ten weeks too soon. I’ve been reflecting a lot on prematurity and its place in our story. I recently spoke on a Parent Panel to share our stories of prematurity and journeys home from the NICU. I caught the tail-end of a former […]

Give me a second while I readjust my crown

I’ve written a lot about trauma, especially the trauma that accompanies a premature birth. I think a lot of the post secondary trauma I’ve experienced in the girls’ lifetime is related to their birth; more so than the NICU stay. Maybe it was the suddenness of the delivery versus the time I had to adjust […]

Adventures in Cerebral Palsy

I’ve written a lot about letting go of some parenting dreams and expectations when you’re parenting a child with special needs or different abilities. The milestones shift. The path diverts. It really is like heading off on an adventure through the fog; sometimes, the fog engulfs you, stings you, leaves you battered, and other times, […]

Happy Mother’s Day, Warrior Mamas

This weekend marks Mother’s Day, a day for cards and flowers, usually. For some, though, this yearly celebration doesn’t do enough to highlight all the ways mums love, all the things mums have seen, and all the ways mums keep it going.  We can never know another’s story, struggle. For some, Mother’s Day is a […]

Home is where the heart is

Three years ago today, something wonderful happened. Two healthy newborns came home for the first time. Of course, technically they were already 80 days old and had fought battles most children never have to, but home they went to meet their big brother and furball sister, to sleep in a room decorated with stars and […]

In celebration of nurses

There was a time I never really gave nurses much thought. Not that I didn’t care, just that I kind of took them for granted, that when you got sick, nurses would just be there, much like you take oxygen for granted. But when my girls were born just over ten weeks early, I spent […]

Thank you for our year home

Saturday,  March 28th we celebrated the girls’ one year home with a pink and gold filled party attended by friends and family. Then, yesterday, we celebrated the staff at the hospital who made it possible for our girls to come home. Before the girls were even born there were people who took care of them, […]

You know my name isn’t Mummy, right?

My parents gave me a name when I was born, as parents do. Sure, my name has resulted in some pretty epic Starbucks fails and always left me wondering if the teacher was calling for me or if there actually was a kid named Alicia in class with me, but I like my name. Now, […]

‘Twas the night before Christmas

‘Twas the night before Christmas and this mama reflected This time last year, Christmas felt quite neglected. As we trudged through the city looking for lodging, The ice storm we were constantly dodging. To the hospital we went on Christmas morning For the babies’ daily monitoring. Mama filled with wonder when they would make their […]

It’s Christmastime in the city

I can honestly say that last Christmas was the worst Christmas ever, and I’m counting the time I drove home from Chicago on Christmas Eve and had to deal with ice the whole way through Michigan,  a massive accident after the border, and not getting to my parents’ house until almost 3 AM. Last year […]