Yesterday was World CP Day, a day where everyone wore green and hopefully learned a bit more about what cerebral palsy is, and what it isn’t. My Facebook feed was flooded with green from other mums I know who also have children with CP and by organizations looking to promote understanding and compassion. Every one […]
It seems like every day is national day of something or other, and usually I don’t even notice, but today is extra special; Neonatal Nurses Day. And let me ask you, have you hugged a NICU nurse today? If you ever get the chance, you should. These people, these wonderfully strong and bright people, see […]
I’m sitting in the same place I’ve sat many times before; the hospital cafeteria. One floor below me, Ella is laying in a giant MRI machine that is capturing pictures of her brain. Her second time, and though I know the routine and what to expect, watching your baby fight the mask meant to put […]
Yesterday was World Blood Donor Day, and I have a message for someone who is very special to me, yet someone I have never met. Someone who has no idea I exist. But to you, special person, you magnificent soul, you amazing person, thank you. Thank you for saving my baby’s life. Thank you for […]
I’ve thought about the term “special needs” a lot since the girls were born. As a social worker, I’ve worked with kids and adults with all kinds of levels of functioning and with every type of concern or difficulty you could imagine. I’ve never liked labels. I don’t think social workers should identify anyone or […]
I’d like to thank my friend for her suggested post title, as my original title was: When it rains, it pours, and the roof leaks and the basement floods, and mold grows, and an electrical fire starts, and when heading down the stairs to clean up, you fall and break your leg, and then a […]
I have to say that I love to write. I remember writing short stories and novellas when I was a kid. I even tried my hand at poetry and music. Of course, I never imagined that anyone would want to read my writing, let alone publish it. I’m thrilled to be featured twice in the […]
Saturday, March 28th we celebrated the girls’ one year home with a pink and gold filled party attended by friends and family. Then, yesterday, we celebrated the staff at the hospital who made it possible for our girls to come home. Before the girls were even born there were people who took care of them, […]
March is Cerebral Palsy awareness month and today, March 25th, marks National Cerebral Palsy Awareness Day. It also happens to be the first one since Ella’s diagnosis in January. There’s a lot of things I could tell you about CP; it’s caused by an injury to the brain, most often at birth, and does not […]
For most parents, there’s one special day that stands out; the day their baby was born. Maybe the due date is remembered, but rarely acknowledged beyond the parents reminiscing. For preemie parents, there’s usually three important days; the day their baby should have been born, the day they were born, and the day they came […]
Adventures With Multiples 